I can certainly understand how being around packs of cripples can be
intimidating, what with all the acronyms and initialisms and other inside references
flying around. It’s enough to make your brain explode if you’re a vert (which
is what I call people who walk because it’s short for vertical).
Like for instance, I am crippled because of MD and so is one of my
friends. But his MD isn’t anything like my MD. My MD is muscular dystrophy but
his MD is macular degeneration, which means he’s legally blind. People always
refer to my type of MD as MD but I never heard anyone call macular degeneration
MD. I don’t know who decides these things.
And then there’s multiple sclerosis, which is called MS, which is why people
always get it mixed up with MD.
And what about TBI, which stands for traumatic brain injury? Don’t
confuse that with UTI, which stands for urinary tract infection. But there’s no
such thing as a UBI or untraumatic brain injury. Maybe it’s because every brain
injury is traumatic. But again, I don’t know who decides these things.
Perhaps the most popular initialism in cripple circles is SSI because
it stands for Supplemental Security Income and that’s the Social Security fund
through which a lot of cripples get the money they live off of. SSI isn’t the same as SCI, which stands for
spinal cord injury, although a lot of people who are crippled because of an SCI
live off of SSI.
Just about every cripple uses some sort of DME, which stands for
durable medical equipment, which is stuff like wheelchairs. And there’s a lot
of talk about ADLs, which stands for activities of daily living, which is the
stuff everybody (crippled or not ) does every day, like the putting on pants
and brushing teeth. Cripples are often evaluated to see how much we suck at
performing our ADLs so we can prove that we are crippled enough to receive
stuff like DME and SSI.
So if you hang around cripple circles long enough, you’ll hear such
dizzying banter as, “That guy with the TBI has a UTI.” Or, “That guy with the
SCI really needs DME but he can’t afford it because he’s on SSI.”
This is a great post. Acronyms be damned TBH TBI COMMUNITY. Atypically yours in brain, Xtremecane
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