Thursday, August 10, 2017
So here’s what makes me crippled: It turns out that my body evidently doesn’t produce survival motor neuron protein at high enough levels due to a mutation in my survival motor neuron 1 gene.
Really? That’s all it is? Sixty years and counting of dragging my crippled ass around and it’s all pretty much due to a fucking protein deficiency? Well I’ll be dipped in shit. It’s kind of like the Down Syndrome people. They all just have an extra chromosome. All the shit we give those folks and that’s the only difference between us and them.
Knowing that all I have is a protein deficiency is kind of a letdown. It makes me feel so ordinary. Some of the previous explanations for what makes a person become crippled like me were much more interesting, such as demonic possession or excessive masturbation.
And now, who knows, but maybe they’ll be able to treat my protein deficiency to the point where my species of cripple will soon become extinct. Because last December, the FDA approved a drug called Spinraza, which showed some positive results when tested on people who are crippled for the same reason I am.
So maybe someday there won’t be any new cripples like me in the pipeline and once all the old farts who have what I have die off we’ll all be gone. We will have gone the way of the polios. When I was a kid 50 years ago at the cripple school, there were polios all over the place. You couldn't spit without hitting a polio. But the only polios you see in these parts these days are old farts. And once they die off, the only place you’ll see polios anymore will be in old black-and-white photos. It’s true, however, that the polios could always make a comeback because, technically, they aren’t extinct.
But the sliptos are an extinct species of cripple. Back in cripple school about 50 years ago, there were these kids who’d show up one day walking on crutches with one leg tied behind their backs. They walked that way because they’d fucked up their hip somehow and their condition had some weird medical name that sounded like Slipped Hippy-feces. So we just called them sliptos. Gradually, these kids got better and returned to walking like regular kids walk so they were allowed to return to the schools for regular kids. You never see sliptos anymore. Either kids no longer fuck up their hips that way or if they do there’s a better way to fix it that doesn’t require them to walk around on crutches for a year with one leg tied behind their back.
Knowing that cripples like me could soon be extinct is kind of a letdown too. It feels weird to picture everybody looking at black-and-white photos of us and being glad we’re gone.
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