(Trigger warning. This entry contains multiple references to diarrhea.)
I have a friend who’s crippled for the same reason I am. He’s also about the same age as me.
I’ve written before about how this friend is getting this new treatment that supposedly might make life marginally better for people who are crippled for the same reason we are. But the treatment required getting a monthly spinal injection. So I said no thanks. I’m just not into pursuing cripple treatments and cures that require any more effort than eating my spinach. Maybe I’m just lazy, but I tell myself it’s a quality of life thing. Rather than running back and forth to a doctor’s office or working out incessantly in a physical therapy gym for countless hours, I’d rather spend whatever time I have left doing things I find much more fulfilling, like staring at the wall.
But recently my friend told me that the treatment no longer requires spinal injections. Now he just takes an oral medication daily. This prompted me to consider reconsidering signing up for this treatment. That didn’t sound like much effort. My friend told me the name of the medication and I thought about asking my doctor about it.
But there’s been a dramatic new development that has made me reconsider any thought of reconsidering. My friend has informed me that a side effect of the medication is that it sometimes gives him diarrhea. Diarrhea is one of my worst nightmares because in order for me to take a dump, I need someone to lift me on and off the bowl. So it’s imperative that I have well–trained, cooperative, predictable, disciplined bowels that only rumble during the designated hours when I’ve scheduled someone to be around to lift me on and off of the bowl. An uprising at any other time of day is, obviously, a source of great stress for me.
Thus far in life, I’ve been blessed with a tremendous talent for holding it all in until such time as it's safe to let loose. This is such a gift that it’s almost enough to make me believe in God.
So I won’t be signing up for this cripple treatment, even if it is just a simple matter of taking a daily dose of oral medication. I dare not thumb my nose at fate like that.It’s a quality of life thing.